The IBC Network Foundation Community Forum is for those who have been impacted by inflammatory breast cancer.
If you are looking for the Inflammatory Breast Cancer Support group that was started on Facebook by
Terry Lynn Arnold, you are in the right place!
The purpose of this group is to be a support group that shares scientific information to help women survive inflammatory breast cancer.
What does that mean? A support group can give and receive support, be a place to vent, or sometimes a place to lay down your worries with others who understand. We ask questions, we make suggestions; we give hope, love and friendship. We bond over a common issue, the disease that has made friends of women who might not have ever crossed paths otherwise.
At the end of the day, we are all the same. We are women who want to live their lives, happy and healthy.
Steps to Getting Started
Important information regarding treatment:
Inflammatory breast cancer (IBC) is an aggressive disease that has different treatment needs from other breast cancers. While it is possible to get good care in your local community, there are several specialty centers in the US with more expertise in this rare cancer.
There is a published open-access paper detailing the standard of care for inflammatory breast cancer agreed upon by the international expert panel. If your care differs from this, we encourage you to ask questions of your care team.